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Have you participated in a clinical trial? Now is the time! Together, the FRAXA Research Foundation and the National Fragile X Foundation encourage families living with Fragile X to participate in clinical trials. We do not currently have an approved treatment for Fragile X syndrome, though there are a few under investigation. Investigational treatments go through rigorous testing, including clinical trials, and must be approved by the FDA before they are available for public use. There are seve
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Ever wondered who’s behind the care at Fragile X clinics? Say hello to Dr. Charron Lewis from Metro Health Medical Center in Cleveland, OH, a passionate advocate for the Fragile X community, whose clinic is part of the NFXF Fragile X Clinical and Research Consortium (FXCRC). 📍Curious about clinics near you? https://fragilex.org/resources/clinics/ #fragilexawareness #FragileXresearch #fragilex | The National Fragile X Foundation
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